Stories

Rhonda is a blogger on a mission. As an avid writer and reader, she’s maintained her personal blog for close to a decade. But in 2021, her writing took on a more meaningful purpose after she was diagnosed with pancreatic cancer.

Nisreen Shamseddine, PharmD, MS, MBA, a community pharmacist and currently a Medical Strategy Lead at Ipsen, shares why a pharmacist can be an important member of your care team and not only the “last step” before starting a new medicine.

When she first heard the prognosis, Caitlin thought, “that is not possible. My dad has to be at my graduation in May – he needs more time than that.” She knew that her family would fight for more time.

It’s no secret that the biotech and pharma industries are highly regulated and for very good reason. We have an important role to play in ensuring new, innovative medicines reach the people who need them. But the rules that govern…

Dr. Lindsey Rodrigues, a biomedical engineer and cancer biologist by training, and Lindsey Eichinger, who has a background in veterinary sciences and cell biology, are two scientists at Ipsen leading the exploration of epigenetics – a new frontier for cancer research and the future of cancer.

Randy loves to read, enjoy the outdoors, and spend time with his family. He enjoys going to the gym and took up aquatic therapy to exercise and make new friends. He’s come a long way since he experienced a car…

Nearly 25 years ago, the five-year survival rate for pancreatic cancer was just 5 percent, making it one of the most difficult cancers to treat with the poorest prognosis.

Carli and Erin, cross-country best friends, discuss how they’ve realized the importance of a strong support network of immediate family and friends, along with people who have a shared experience of living with FOP. Their connections have been key to…

Liz Kalina, Vice President of North America Corporate Affairs and Patient Services at Ipsen reflects on an Ipsen-sponsored panel at SXSW® focused on the power in speaking up for yourself and Becoming the CEO of Your Health.

Monia Vial, Senior Vice President, Franchise Head, Rare Disease Business Unit at Ipsen reflects on a conversation with Courageous Parents Network to educate Ipsen colleagues about shared decision-making and potential positive impacts when we better understand how patients, their care…

L. Marie started her career more than 20 years ago helping others access community health programs and healthcare—a skillset she never imagined would eventually be put to use advocating for her own health after being dismissed by her doctors.  

Dr. Mónica de Abadal, Head of Medical Affairs, North America at Ipsen shares why she believes it takes everyone in the healthcare ecosystem coming together to close existing gaps and address health inequities in cancer care. 

Dr. Amauri Soares, VP Head of Early Development & Innovation Oncology at Ipsen usesmusic to explain the importance of understanding the genetics of cancer and how the emerging field ofepigenetics could unlock a new paradigm for precision medicine.

Debbie has been living with a blood cancer, follicular lymphoma (FL), since 2011 when she was initially diagnosed during her studies in England. While living with an indolent cancer has had its challenges and can be filled with uncertainty, Debbie…

Hub experienced a hemorrhagic stroke in 2021 as a result of bleeding in the brain. Like many stroke survivors, Hub experiences spasticity, a condition in which muscles contract uncontrollably leading to pain, stiffness and limited movement. As a father of…

Savannah – or Sassy Savvy as she’s known by her family – is a caring sister, a strong-willed daughter and above all else, overfilling with creativity, happiness and laughter. Savannah is also living with a rare disease, fibrodysplasia ossificans progressiva…

Nora and her husband, Hector, met 39 years ago, got married shortly after, and have been inseparable ever since. In 2021, Hector was diagnosed with metastatic pancreatic cancer, which threw their entire family into navigating a very difficult diagnosis. Nora…

Sabrina is a lover of nature, mother and grandmother, whose outlook on life is to make every moment count. Sabrina lives with primary biliary cholangitis (PBC), which means every day is different depending on the severity of her symptoms, but…

This year marks the 17th anniversary since the discovery of the ACVR1 gene was announced, a major scientific milestone in fibrodysplasia ossificans progressiva (FOP) research that helped us understand what causes the condition. On April 23, we marked FOP Awareness Day to honor…

I was honored to be invited to take on the challenge to live ‘A Life in a Day of a patient with FOP’ – but also apprehensive. The challenge simulated a day spent living as someone who has fibrodysplasia ossificans…

Hear what CEO David Loew has to say about the official close of its acquisition of Epizyme.

Today, we are broadening our commitment to providing everyone with the opportunity to read and understand our research. From July 2022, we will publish, as a minimum, a 250-word plain language summary alongside all company-sponsored journal publications from human studies.